I got a lot of great news! First of all the medical stuff:
I got a phone call from my transplant coordinator and we set up my final tests to finish my profile to give to the transplant team.
My Sister in soul- Ng got a call from my Transplant coordinator as well. I don't know what it entailed, I didn't think to ask, but the fact that she got a call back means I am that much closer to being done with all this!
Now for school: I currently have a 4.0 and perfect attendance. I am also one of the class leaders it seems. I guess there is something to be said for being immensely reliable. I am planning the schools Criminal Justice social for late this spring/early summer and planning on joining the Criminal justice club and becoming a tutor.
Yes, I am doing a whole hell of a lot, but just let me say this: After so many many months of being completely inactive, this feels really good. I'm being productive and working towards a career which is something I've never had.
I've been immensely lucky while all this has been going on, I feel really good. I'm on overnight dialysis now, and it's working better than I ever had any right to think it would. It's easier on my body and I sleep fairly well while I'm there.
I hope to be updating more often than I have been, but life being what it is, I can't promise that right now.
Monday, January 31, 2011
Saturday, January 15, 2011
Medical Update
It's been a while since I've posted a medical update, and I apologize for that. Things have been rather crazy, but in a good way lately.
After I was released from the hospital on December 8th I was the new owner of an AV graft, that is a small tube in my right forearm connected to a vein and an artery. This allows for the dialysis needles to enter both sides and draw blood and cleanse it more efficiently. The surgery was long and the healing painful, but it was finally ready 4 weeks later. In the intervening time I was again hospitalized with another catheter infection, however lucky me! The infections never left the catheter. So, thankfully they just pulled it out and that was that. I had been having some neurological symptoms, however over time they seem to have cleared up. I honestly believe it was because of the ineffectiveness of the catheter that caused them.
So, the New Year came and went and the access is holding up -beautifully-. It's doing well enough that I have returned to college and am now on the overnight dialysis unit where I go in at 9pm and sleep there while the machine runs until 6am or so then go home.
I cannot thank the many friends and family members who have worked to assist us in our time of need over this past holiday season, and I know that I can never ever repay that generosity except to keep paying it forward as I try to do always. I know that should anyone ever be in need..if I can help Tell Me. I will.
I will be posting a more personal update tomorrow about how life is going outside of medical things, as well as pics of the kids ;) Stay tuned.
After I was released from the hospital on December 8th I was the new owner of an AV graft, that is a small tube in my right forearm connected to a vein and an artery. This allows for the dialysis needles to enter both sides and draw blood and cleanse it more efficiently. The surgery was long and the healing painful, but it was finally ready 4 weeks later. In the intervening time I was again hospitalized with another catheter infection, however lucky me! The infections never left the catheter. So, thankfully they just pulled it out and that was that. I had been having some neurological symptoms, however over time they seem to have cleared up. I honestly believe it was because of the ineffectiveness of the catheter that caused them.
So, the New Year came and went and the access is holding up -beautifully-. It's doing well enough that I have returned to college and am now on the overnight dialysis unit where I go in at 9pm and sleep there while the machine runs until 6am or so then go home.
I cannot thank the many friends and family members who have worked to assist us in our time of need over this past holiday season, and I know that I can never ever repay that generosity except to keep paying it forward as I try to do always. I know that should anyone ever be in need..if I can help Tell Me. I will.
I will be posting a more personal update tomorrow about how life is going outside of medical things, as well as pics of the kids ;) Stay tuned.
Friday, January 7, 2011
Once again it's been a while
However, I feel that things have gotten stable enough to really say that they are getting -better-. I spent only a few more days in the hospital right before new years and then returned home. My AV graft is working beautifully and I am feeling better and stronger all the time. New Years eve for me heralded in a new perspective for me and a chance at living a life again.
My DH was told when he returned after the holidays that he would be a permanent solution to their problems so any concern we had about weather or not we needed to be looking for a new position for him this year are gone. What a friggin relief that is! It has been since the beginning of our relationship back in 07 that He was laid off from work and had not had a long term position since then. It's been going from one temp assignment to the next, one seasonal job to the next. It was making us both very crazy. Knowing now that he is somewhere that he is needed and also that it is some place that he truly -enjoys- for a chance is making us both feel much more stable.
I also have made a change. I've gone back to school. After a vision a dear friend had about my becoming a private investigator. I've taken it a step further and have enrolled at Kaplan University downtown for criminal justice. I'm having an amazing time, it seems like this is exactly what I am supposed to be doing. My mind feels stretched and used and I am more peaceful than I have been in forever.
Amazingly enough the housework is still getting done and dinner is on the table. I'm not feeling rushed or over worked in any way.
~THank You, G-d for bringing me peace.
My DH was told when he returned after the holidays that he would be a permanent solution to their problems so any concern we had about weather or not we needed to be looking for a new position for him this year are gone. What a friggin relief that is! It has been since the beginning of our relationship back in 07 that He was laid off from work and had not had a long term position since then. It's been going from one temp assignment to the next, one seasonal job to the next. It was making us both very crazy. Knowing now that he is somewhere that he is needed and also that it is some place that he truly -enjoys- for a chance is making us both feel much more stable.
I also have made a change. I've gone back to school. After a vision a dear friend had about my becoming a private investigator. I've taken it a step further and have enrolled at Kaplan University downtown for criminal justice. I'm having an amazing time, it seems like this is exactly what I am supposed to be doing. My mind feels stretched and used and I am more peaceful than I have been in forever.
Amazingly enough the housework is still getting done and dinner is on the table. I'm not feeling rushed or over worked in any way.
~THank You, G-d for bringing me peace.
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